Mental health professionals’ perceptions on patients control of data sharing

Julia Ivanova, Adela Grando, Anita Murcko, Michael Saks, Mary Jo Whitfield, Christy Dye, Darwyn Chern

Research output: Contribution to journalArticlepeer-review

5 Scopus citations


Integrated mental and physical care environments require data sharing, but little is known about health professionals’ perceptions of patient-controlled health data sharing. We describe mental health professionals’ views on patient-controlled data sharing using semi-structured interviews and a mixed-method analysis with thematic coding. Health information rights, specifically those of patients and health care professionals, emerged as a key theme. Behavioral health professionals identified patient motivations for non-sharing sensitive mental health records relating to substance use, emergency treatment, and serious mental illness (94%). We explore conflicts between professional need for timely access to health information and patient desire to withhold some data categories. Health professionals’ views on data sharing are integral to the redesign of health data sharing and informed consent. As well, they seek clarity about the impact of patient-controlled sharing on health professionals’ roles and scope of practice.

Original languageEnglish (US)
Pages (from-to)2011-2029
Number of pages19
JournalHealth informatics journal
Issue number3
StatePublished - Sep 1 2020


  • data privacy
  • data sharing
  • electronic medical records
  • interview
  • mental health
  • thematic analysis

ASJC Scopus subject areas

  • Health Informatics


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