In Our Community, Dementia Speaks: Pilot of a person-centered training targeting African-American caregivers of persons-living with dementia (innovative practice)

M. Aaron Guest; Macie P. Smith

doi:10.1177/1471301219885784

In Our Community, Dementia Speaks: Pilot of a person-centered training targeting African-American caregivers of persons-living with dementia (innovative practice)

M. Aaron Guest, Macie P. Smith

Nursing and Health Innovation, Edson College of (EDSON)

Research output: Contribution to journal › Article › peer-review

7 Scopus citations

Abstract

African-Americans face higher rates of Alzheimer’s disease and other related dementias than any other group. With cases of Alzheimer’s disease and other related dementias expected to double by 2050 the African-American community stands to be disproportionally affected. Recognizing the need for culturally tailored programming for caregivers and those living with Alzheimer’s disease and other related dementias In Our Community, Dementia Speaks was developed through a community-participatory model of engagement. While pilot results showed a non-statistically significant increase in pre/posttest knowledge a more nuanced review of the data indicates success in changing attitudes and behaviors regarding the disease among caregivers. Results provide a guide for informing future interventions and improving existing programming.

Original language	English (US)
Pages (from-to)	391-397
Number of pages	7
Journal	Dementia
Volume	20
Issue number	1
DOIs	https://doi.org/10.1177/1471301219885784
State	Published - Jan 2021

Keywords

African-American
Alzheimer’s
caregivers
community
education

ASJC Scopus subject areas

Sociology and Political Science
Social Sciences(all)

Access to Document

10.1177/1471301219885784

Cite this

@article{375f22f49cb545aba8d9e6d5e68ac448,

title = "In Our Community, Dementia Speaks: Pilot of a person-centered training targeting African-American caregivers of persons-living with dementia (innovative practice)",

abstract = "African-Americans face higher rates of Alzheimer{\textquoteright}s disease and other related dementias than any other group. With cases of Alzheimer{\textquoteright}s disease and other related dementias expected to double by 2050 the African-American community stands to be disproportionally affected. Recognizing the need for culturally tailored programming for caregivers and those living with Alzheimer{\textquoteright}s disease and other related dementias In Our Community, Dementia Speaks was developed through a community-participatory model of engagement. While pilot results showed a non-statistically significant increase in pre/posttest knowledge a more nuanced review of the data indicates success in changing attitudes and behaviors regarding the disease among caregivers. Results provide a guide for informing future interventions and improving existing programming.",

keywords = "African-American, Alzheimer{\textquoteright}s, caregivers, community, education",

author = "Guest, {M. Aaron} and Smith, {Macie P.}",

note = "Funding Information: The author(s) disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: The project described was supported through grants from Columbia Urban League and the South Carolina Lt. Governor?s Office on Aging. Additional support was provided by the NIH National Center for Advancing Translational Sciences through grant number UL1TR000117. The content is solely the responsibility of the authors and does not necessarily represent the official views of the NIH, the Columbia Urban League, or The South Carolina Lt. Governor?s Office on Aging. Publisher Copyright: {\textcopyright} The Author(s) 2019.",

year = "2021",

month = jan,

doi = "10.1177/1471301219885784",

language = "English (US)",

volume = "20",

pages = "391--397",

journal = "Dementia",

issn = "1471-3012",

publisher = "SAGE Publications Ltd",

number = "1",

}

TY - JOUR

T1 - In Our Community, Dementia Speaks

T2 - Pilot of a person-centered training targeting African-American caregivers of persons-living with dementia (innovative practice)

AU - Guest, M. Aaron

AU - Smith, Macie P.

N1 - Funding Information: The author(s) disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: The project described was supported through grants from Columbia Urban League and the South Carolina Lt. Governor?s Office on Aging. Additional support was provided by the NIH National Center for Advancing Translational Sciences through grant number UL1TR000117. The content is solely the responsibility of the authors and does not necessarily represent the official views of the NIH, the Columbia Urban League, or The South Carolina Lt. Governor?s Office on Aging. Publisher Copyright: © The Author(s) 2019.

PY - 2021/1

Y1 - 2021/1

N2 - African-Americans face higher rates of Alzheimer’s disease and other related dementias than any other group. With cases of Alzheimer’s disease and other related dementias expected to double by 2050 the African-American community stands to be disproportionally affected. Recognizing the need for culturally tailored programming for caregivers and those living with Alzheimer’s disease and other related dementias In Our Community, Dementia Speaks was developed through a community-participatory model of engagement. While pilot results showed a non-statistically significant increase in pre/posttest knowledge a more nuanced review of the data indicates success in changing attitudes and behaviors regarding the disease among caregivers. Results provide a guide for informing future interventions and improving existing programming.

AB - African-Americans face higher rates of Alzheimer’s disease and other related dementias than any other group. With cases of Alzheimer’s disease and other related dementias expected to double by 2050 the African-American community stands to be disproportionally affected. Recognizing the need for culturally tailored programming for caregivers and those living with Alzheimer’s disease and other related dementias In Our Community, Dementia Speaks was developed through a community-participatory model of engagement. While pilot results showed a non-statistically significant increase in pre/posttest knowledge a more nuanced review of the data indicates success in changing attitudes and behaviors regarding the disease among caregivers. Results provide a guide for informing future interventions and improving existing programming.

KW - African-American

KW - Alzheimer’s

KW - caregivers

KW - community

KW - education

UR - http://www.scopus.com/inward/record.url?scp=85074831097&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=85074831097&partnerID=8YFLogxK

U2 - 10.1177/1471301219885784

DO - 10.1177/1471301219885784

M3 - Article

C2 - 31684764

AN - SCOPUS:85074831097

SN - 1471-3012

VL - 20

SP - 391

EP - 397

JO - Dementia

JF - Dementia

IS - 1

ER -

In Our Community, Dementia Speaks: Pilot of a person-centered training targeting African-American caregivers of persons-living with dementia (innovative practice)

Abstract

Keywords

ASJC Scopus subject areas

Access to Document

Other files and links

Fingerprint

Cite this