TY - JOUR
T1 - Gaps in the System
T2 - Supporting People Living with Dementia
AU - King, Madeline
AU - Peckham, Allie
AU - Marani, Husayn
AU - Roerig, Monika
AU - Yung, Seles
AU - McGrail, Kimberlyn
AU - Young, Yuchi
AU - Shaw, James
AU - Marchildon, Greg
N1 - Publisher Copyright:
© 2023 The Author(s). Published with license by Taylor & Francis Group, LLC.
PY - 2023
Y1 - 2023
N2 - Persons living with dementia and their caregivers often face challenges in accessing support for their complex needs. This study aims to understand how program administrators, people living with dementia, unpaid caregivers, and decision-makers perceive specific dementia care programs and whether they are adequately meeting the needs of individuals living with dementia. Forty semi-structured interviews were conducted between 2018 and 2020 in five North American jurisdictions. Three main gaps were identified (1) disconnected system infrastructure, (2) lack of comprehensive services to meet diverse needs, and (3) inconsistent understandings of dementia. Despite having programs in place, there remain significant limitations in systems that could be addressed to adequately meet the needs of individuals living with dementia and their caregivers.
AB - Persons living with dementia and their caregivers often face challenges in accessing support for their complex needs. This study aims to understand how program administrators, people living with dementia, unpaid caregivers, and decision-makers perceive specific dementia care programs and whether they are adequately meeting the needs of individuals living with dementia. Forty semi-structured interviews were conducted between 2018 and 2020 in five North American jurisdictions. Three main gaps were identified (1) disconnected system infrastructure, (2) lack of comprehensive services to meet diverse needs, and (3) inconsistent understandings of dementia. Despite having programs in place, there remain significant limitations in systems that could be addressed to adequately meet the needs of individuals living with dementia and their caregivers.
KW - Alzheimer’s disease
KW - dementia
KW - health systems
KW - integrated care/care coordination
KW - person-centered approach/care
UR - http://www.scopus.com/inward/record.url?scp=85164530649&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=85164530649&partnerID=8YFLogxK
U2 - 10.1080/08959420.2023.2226341
DO - 10.1080/08959420.2023.2226341
M3 - Article
AN - SCOPUS:85164530649
SN - 0895-9420
JO - Journal of Aging and Social Policy
JF - Journal of Aging and Social Policy
ER -