Changes to Family Caregiving of Older Adults and Adults with Disabilities during COVID-19

Elizabeth Lightfoot, Heejung Yun, Rajean Moone, Jacob Otis, Kamal Suleiman, Kenneth Turck, Courtney Kutzler

Research output: Contribution to journalArticlepeer-review

29 Scopus citations


The strict restrictions to reduce the spread of COVID-19 have disrupted the lives of many at-risk people and their family caregivers. This study explored how family caregivers perceived that family caregiving had changed during COVID-19 and the strategies they used to cope with these changes. We conducted 52 semi-structured interviews with family caregivers of adults over age 65 or adults with disabilities and analyzed the data through an inductive thematic analysis. Caregivers perceived the largest COVID-19-related caregiving changes to be limited social and physical contacts, changed caregiving tasks, reduced services and supports, and a new focus on vigilance and safety. Caregivers made numerous changes to caregiving, including keeping connected, keeping relatives occupied, getting support and services in new ways, and reducing caregiver stress.

Original languageEnglish (US)
JournalGerontology and Geriatric Medicine
StatePublished - 2021
Externally publishedYes


  • aging
  • connections
  • family caregivers
  • older people
  • supports
  • technology

ASJC Scopus subject areas

  • Geriatrics and Gerontology


Dive into the research topics of 'Changes to Family Caregiving of Older Adults and Adults with Disabilities during COVID-19'. Together they form a unique fingerprint.

Cite this