Accessing BRCA1/2 data facilitates the detection of disease-associated variants, which is critical to informing clinical management of risks. BRCA1/2 data sharing is complex and many practices exist. We describe current BRCA1/2 data-sharing practices, in the United States and globally, and discuss obstacles and incentives to sharing, based on 28 interviews with personnel at U.S. and non-U.S. clinical laboratories and databases. Our examination of the BRCA1/2 data-sharing landscape demonstrates strong support for and robust sharing of BRCA1/2 data around the world, increasing global accesses to diverse data sets.
ASJC Scopus subject areas
- Issues, ethics and legal aspects
- Health Policy
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Bollinger, J. M. (Contributor), Dolman, L. (Contributor), Cook-Deegan, R. (Contributor), Sanka, A. (Contributor) & Liao, R. G. (Contributor), figshare SAGE Publications, Mar 1 2019