TY - GEN
T1 - Biological citizen publics
T2 - ACM SIGCHI Conference on Creativity and Cognition, C and C 2015
AU - Kuznetsov, Stacey
AU - Kittur, Aniket
AU - Paulos, Eric
N1 - Publisher Copyright:
© 2015 ACM.
PY - 2015/6/22
Y1 - 2015/6/22
N2 - Low-cost genetic sequencing, coupled with novel social media platforms and visualization techniques, present a new frontier for scientific participation, whereby people can learn, share, and act on data embedded within their own bodies. Our study of 23andMe, a popular genetic testing service, reveals how users make sense of and contextualize their genetic results, critique and evaluate the underlying research, and reflect on the broader implications of genetic testing. We frame user groups as citizen science publics - groups that coalesce around scientific issues and work towards resolving shared concerns. Our findings show that personal genetics serves as a site for public engagement with science, whereby communities of biological citizens creatively interpret, debate, and act on professional research. We conclude with design trajectories at the intersection of genetics and creativity support tools: platforms for aggregating hybrid knowledge; tools for creative reflection on professional science; and strategies for supporting collaborations across communities.
AB - Low-cost genetic sequencing, coupled with novel social media platforms and visualization techniques, present a new frontier for scientific participation, whereby people can learn, share, and act on data embedded within their own bodies. Our study of 23andMe, a popular genetic testing service, reveals how users make sense of and contextualize their genetic results, critique and evaluate the underlying research, and reflect on the broader implications of genetic testing. We frame user groups as citizen science publics - groups that coalesce around scientific issues and work towards resolving shared concerns. Our findings show that personal genetics serves as a site for public engagement with science, whereby communities of biological citizens creatively interpret, debate, and act on professional research. We conclude with design trajectories at the intersection of genetics and creativity support tools: platforms for aggregating hybrid knowledge; tools for creative reflection on professional science; and strategies for supporting collaborations across communities.
KW - Biological citizenship
KW - Genetics
KW - Publics
KW - Scientific literacy
UR - http://www.scopus.com/inward/record.url?scp=84962097343&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=84962097343&partnerID=8YFLogxK
U2 - 10.1145/2757226.2757246
DO - 10.1145/2757226.2757246
M3 - Conference contribution
AN - SCOPUS:84962097343
T3 - C and C 2015 - Proceedings of the 2015 ACM SIGCHI Conference on Creativity and Cognition
SP - 303
EP - 312
BT - C and C 2015 - Proceedings of the 2015 ACM SIGCHI Conference on Creativity and Cognition
PB - Association for Computing Machinery, Inc
Y2 - 22 June 2015 through 25 June 2015
ER -