TY - JOUR
T1 - Behavioral Health Professionals' Perceptions on Patient-Controlled Granular Information Sharing (Part 1)
T2 - Focus Group Study
AU - Ivanova, Julia
AU - Tang, Tianyu
AU - Idouraine, Nassim
AU - Murcko, Anita
AU - Whitfield, Mary Jo
AU - Dye, Christy
AU - Chern, Darwyn
AU - Grando, Adela
N1 - Funding Information:
This work was supported by a grant from the National Institute of Mental Health for the following project: My Data Choices, Evaluation of Effective Consent Strategies for Patients With Behavioral Health Conditions (grant R01 MH108992). We thank our collaborating site members, Dr Veronica Sabater and Byron Hoston, for their support in data collection. We are also grateful for the thoughtful comments received from the journal reviewers.
Publisher Copyright:
© Julia Ivanova, Tianyu Tang, Nassim Idouraine, Anita Murcko, Mary Jo Whitfield, Christy Dye, Darwyn Chern, Adela Grando.
PY - 2022/4
Y1 - 2022/4
N2 - Background: Patient-controlled granular information sharing (PC-GIS) allows a patient to select specific health information “granules,” such as diagnoses and medications; choose with whom the information is shared; and decide how the information can be used. Previous studies suggest that health professionals have mixed or concerned opinions about the process and impact of PC-GIS for care and research. Further understanding of behavioral health professionals' views on PC-GIS are needed for successful implementation and use of this technology. Objective: The aim of this study was to evaluate changes in health professionals' opinions on PC-GIS before and after a demonstrative case study. Methods: Four focus groups were conducted at two integrated health care facilities: one serious mental illness facility and one general behavioral health facility. A total of 28 participants were given access to outcomes of a previous study where patients had control over medical record sharing. Participants were surveyed before and after focus groups on their views about PC-GIS. Thematic analysis of focus group output was paired with descriptive statistics and exploratory factor analysis of surveys. Results: Behavioral health professionals showed a significant opinion shift toward concern after the focus group intervention, specifically on the topics of patient understanding (P = .001), authorized electronic health record access (P = .03), patient-professional relationship (P = .006), patient control acceptance (P < .001), and patient rights (P = .02). Qualitative methodology supported these results. The themes of professional considerations (2234/4025, 55.5% of codes) and necessity of health information (260/766, 33.9%) identified key aspects of PC-GIS concerns. Conclusions: Behavioral health professionals agreed that a trusting patient-professional relationship is integral to the optimal implementation of PC-GIS, but were concerned about the potential negative impacts of PC-GIS on patient safety and quality of care.
AB - Background: Patient-controlled granular information sharing (PC-GIS) allows a patient to select specific health information “granules,” such as diagnoses and medications; choose with whom the information is shared; and decide how the information can be used. Previous studies suggest that health professionals have mixed or concerned opinions about the process and impact of PC-GIS for care and research. Further understanding of behavioral health professionals' views on PC-GIS are needed for successful implementation and use of this technology. Objective: The aim of this study was to evaluate changes in health professionals' opinions on PC-GIS before and after a demonstrative case study. Methods: Four focus groups were conducted at two integrated health care facilities: one serious mental illness facility and one general behavioral health facility. A total of 28 participants were given access to outcomes of a previous study where patients had control over medical record sharing. Participants were surveyed before and after focus groups on their views about PC-GIS. Thematic analysis of focus group output was paired with descriptive statistics and exploratory factor analysis of surveys. Results: Behavioral health professionals showed a significant opinion shift toward concern after the focus group intervention, specifically on the topics of patient understanding (P = .001), authorized electronic health record access (P = .03), patient-professional relationship (P = .006), patient control acceptance (P < .001), and patient rights (P = .02). Qualitative methodology supported these results. The themes of professional considerations (2234/4025, 55.5% of codes) and necessity of health information (260/766, 33.9%) identified key aspects of PC-GIS concerns. Conclusions: Behavioral health professionals agreed that a trusting patient-professional relationship is integral to the optimal implementation of PC-GIS, but were concerned about the potential negative impacts of PC-GIS on patient safety and quality of care.
KW - behavioral health professional
KW - electronic consent tool
KW - electronic health record
KW - granular information
KW - granular information sharing
KW - integrated health care
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U2 - 10.2196/21208
DO - 10.2196/21208
M3 - Article
AN - SCOPUS:85129592958
SN - 2368-7959
VL - 9
JO - JMIR Mental Health
JF - JMIR Mental Health
IS - 4
M1 - e21208
ER -