TY - JOUR
T1 - Behavioral Health Professionals' Perceptions on Patient-Controlled Granular Information Sharing (Part 1)
T2 - Focus Group Study
AU - Ivanova, Julia
AU - Tang, Tianyu
AU - Idouraine, Nassim
AU - Murcko, Anita
AU - Whitfield, Mary Jo
AU - Dye, Christy
AU - Chern, Darwyn
AU - Grando, Adela
N1 - Publisher Copyright:
© Julia Ivanova, Tianyu Tang, Nassim Idouraine, Anita Murcko, Mary Jo Whitfield, Christy Dye, Darwyn Chern, Adela Grando.
PY - 2022/4
Y1 - 2022/4
N2 - Background: Patient-controlled granular information sharing (PC-GIS) allows a patient to select specific health information “granules,” such as diagnoses and medications; choose with whom the information is shared; and decide how the information can be used. Previous studies suggest that health professionals have mixed or concerned opinions about the process and impact of PC-GIS for care and research. Further understanding of behavioral health professionals' views on PC-GIS are needed for successful implementation and use of this technology. Objective: The aim of this study was to evaluate changes in health professionals' opinions on PC-GIS before and after a demonstrative case study. Methods: Four focus groups were conducted at two integrated health care facilities: one serious mental illness facility and one general behavioral health facility. A total of 28 participants were given access to outcomes of a previous study where patients had control over medical record sharing. Participants were surveyed before and after focus groups on their views about PC-GIS. Thematic analysis of focus group output was paired with descriptive statistics and exploratory factor analysis of surveys. Results: Behavioral health professionals showed a significant opinion shift toward concern after the focus group intervention, specifically on the topics of patient understanding (P = .001), authorized electronic health record access (P = .03), patient-professional relationship (P = .006), patient control acceptance (P < .001), and patient rights (P = .02). Qualitative methodology supported these results. The themes of professional considerations (2234/4025, 55.5% of codes) and necessity of health information (260/766, 33.9%) identified key aspects of PC-GIS concerns. Conclusions: Behavioral health professionals agreed that a trusting patient-professional relationship is integral to the optimal implementation of PC-GIS, but were concerned about the potential negative impacts of PC-GIS on patient safety and quality of care.
AB - Background: Patient-controlled granular information sharing (PC-GIS) allows a patient to select specific health information “granules,” such as diagnoses and medications; choose with whom the information is shared; and decide how the information can be used. Previous studies suggest that health professionals have mixed or concerned opinions about the process and impact of PC-GIS for care and research. Further understanding of behavioral health professionals' views on PC-GIS are needed for successful implementation and use of this technology. Objective: The aim of this study was to evaluate changes in health professionals' opinions on PC-GIS before and after a demonstrative case study. Methods: Four focus groups were conducted at two integrated health care facilities: one serious mental illness facility and one general behavioral health facility. A total of 28 participants were given access to outcomes of a previous study where patients had control over medical record sharing. Participants were surveyed before and after focus groups on their views about PC-GIS. Thematic analysis of focus group output was paired with descriptive statistics and exploratory factor analysis of surveys. Results: Behavioral health professionals showed a significant opinion shift toward concern after the focus group intervention, specifically on the topics of patient understanding (P = .001), authorized electronic health record access (P = .03), patient-professional relationship (P = .006), patient control acceptance (P < .001), and patient rights (P = .02). Qualitative methodology supported these results. The themes of professional considerations (2234/4025, 55.5% of codes) and necessity of health information (260/766, 33.9%) identified key aspects of PC-GIS concerns. Conclusions: Behavioral health professionals agreed that a trusting patient-professional relationship is integral to the optimal implementation of PC-GIS, but were concerned about the potential negative impacts of PC-GIS on patient safety and quality of care.
KW - behavioral health professional
KW - electronic consent tool
KW - electronic health record
KW - granular information
KW - granular information sharing
KW - integrated health care
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U2 - 10.2196/21208
DO - 10.2196/21208
M3 - Article
AN - SCOPUS:85129592958
SN - 2368-7959
VL - 9
JO - JMIR Mental Health
JF - JMIR Mental Health
IS - 4
M1 - e21208
ER -