Design and pilot testing of an English and Spanish behavioral health patient survey on data privacy

Marcela P. Aliste; Adela Grando; Anita Murcko; Hiral Soni; Michael Todd; Madhumita Mukundan; Michael Saks; Caroline Horrow; Richard Sharp; Christy Dye; Darwyn Chern; Mary Jo Whitfield; Mark Callesen

doi:10.3233/SHTI190699

Design and pilot testing of an English and Spanish behavioral health patient survey on data privacy

Marcela P. Aliste, Adela Grando, Anita Murcko, Hiral Soni, Michael Todd, Madhumita Mukundan, Michael Saks, Caroline Horrow, Richard Sharp, Christy Dye, Darwyn Chern, Mary Jo Whitfield, Mark Callesen

Research output: Chapter in Book/Report/Conference proceeding › Conference contribution

Abstract

We piloted a Spanish and English survey on data privacy. Thirty-one Latino behavioral health patients completed the survey in person with a preference for paper (78%) over electronic questionnaire. Dialect variations across Latino countries and the lack of tools to assess reading level in Spanish affected comprehension. Our experience will help others address similar tasks more effectively and encourage inclusion of Latino populations in future research.

Original language	English (US)
Title of host publication	MEDINFO 2019
Subtitle of host publication	Health and Wellbeing e-Networks for All - Proceedings of the 17th World Congress on Medical and Health Informatics
Editors	Brigitte Seroussi, Lucila Ohno-Machado, Lucila Ohno-Machado, Brigitte Seroussi
Publisher	IOS Press
Pages	1891-1892
Number of pages	2
ISBN (Electronic)	9781643680026
DOIs	https://doi.org/10.3233/SHTI190699
State	Published - Aug 21 2019
Event	17th World Congress on Medical and Health Informatics, MEDINFO 2019 - Lyon, France Duration: Aug 25 2019 → Aug 30 2019

Publication series

Name	Studies in Health Technology and Informatics
Volume	264
ISSN (Print)	0926-9630
ISSN (Electronic)	1879-8365

Conference

Conference	17th World Congress on Medical and Health Informatics, MEDINFO 2019
Country/Territory	France
City	Lyon
Period	8/25/19 → 8/30/19

Keywords

Behavior
Health Surveys
Latinos
Privacy

ASJC Scopus subject areas

Biomedical Engineering
Health Informatics
Health Information Management

Access to Document

10.3233/SHTI190699

Cite this

Aliste, M. P., Grando, A., Murcko, A., Soni, H., Todd, M., Mukundan, M., Saks, M., Horrow, C., Sharp, R., Dye, C., Chern, D., Whitfield, M. J., & Callesen, M. (2019). Design and pilot testing of an English and Spanish behavioral health patient survey on data privacy. In B. Seroussi, L. Ohno-Machado, L. Ohno-Machado, & B. Seroussi (Eds.), MEDINFO 2019: Health and Wellbeing e-Networks for All - Proceedings of the 17th World Congress on Medical and Health Informatics (pp. 1891-1892). (Studies in Health Technology and Informatics; Vol. 264). IOS Press. https://doi.org/10.3233/SHTI190699

Design and pilot testing of an English and Spanish behavioral health patient survey on data privacy. / Aliste, Marcela P.; Grando, Adela ; Murcko, Anita et al.
MEDINFO 2019: Health and Wellbeing e-Networks for All - Proceedings of the 17th World Congress on Medical and Health Informatics. ed. / Brigitte Seroussi; Lucila Ohno-Machado; Lucila Ohno-Machado; Brigitte Seroussi. IOS Press, 2019. p. 1891-1892 (Studies in Health Technology and Informatics; Vol. 264).

Research output: Chapter in Book/Report/Conference proceeding › Conference contribution

Aliste, MP, Grando, A , Murcko, A, Soni, H, Todd, M, Mukundan, M, Saks, M, Horrow, C, Sharp, R, Dye, C, Chern, D, Whitfield, MJ & Callesen, M 2019, Design and pilot testing of an English and Spanish behavioral health patient survey on data privacy. in B Seroussi, L Ohno-Machado, L Ohno-Machado & B Seroussi (eds), MEDINFO 2019: Health and Wellbeing e-Networks for All - Proceedings of the 17th World Congress on Medical and Health Informatics. Studies in Health Technology and Informatics, vol. 264, IOS Press, pp. 1891-1892, 17th World Congress on Medical and Health Informatics, MEDINFO 2019, Lyon, France, 8/25/19. https://doi.org/10.3233/SHTI190699

Aliste MP, Grando A , Murcko A, Soni H, Todd M, Mukundan M et al. Design and pilot testing of an English and Spanish behavioral health patient survey on data privacy. In Seroussi B, Ohno-Machado L, Ohno-Machado L, Seroussi B, editors, MEDINFO 2019: Health and Wellbeing e-Networks for All - Proceedings of the 17th World Congress on Medical and Health Informatics. IOS Press. 2019. p. 1891-1892. (Studies in Health Technology and Informatics). doi: 10.3233/SHTI190699

Aliste, Marcela P. ; Grando, Adela ; Murcko, Anita et al. / Design and pilot testing of an English and Spanish behavioral health patient survey on data privacy. MEDINFO 2019: Health and Wellbeing e-Networks for All - Proceedings of the 17th World Congress on Medical and Health Informatics. editor / Brigitte Seroussi ; Lucila Ohno-Machado ; Lucila Ohno-Machado ; Brigitte Seroussi. IOS Press, 2019. pp. 1891-1892 (Studies in Health Technology and Informatics).

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Design and pilot testing of an English and Spanish behavioral health patient survey on data privacy

Abstract

Publication series

Conference

Keywords

ASJC Scopus subject areas

Access to Document

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