Data work in healthcare: Challenges for patients, clinicians and administrators

Kathleen Pine, Yunan Chen, Miria Grisot, Naja Holten Møller, Claus Bossen, Gunnar Ellingsen, Melissa Mazmanian

Research output: Chapter in Book/Report/Conference proceedingConference contribution

21 Scopus citations


With the wide adoption of information infrastructures in healthcare (IIH), citizens and healthcare professionals now carry out intensive ‘data work’ as part of their healthcare and self-management practices. For example, citizens use mobile apps to track personal health data for both formal and informal usages, clinicians rely on electronic health records (EHR) to document patient information, and hospital administrators use EHRs to generate data to monitor quality and efficiency of healthcare services. The creation, accumulation, management, and communication of data is increasingly central to patient work, clinical work, and management and governance of healthcare providers. To better understand data work in healthcare, this workshop aims to convene researchers from different disciplines to discuss data work performed among the entire ecosystem of clinical care delivery from patients to clinicians to administrators. Critical topics include but are not limited to: patient data work (both voluntary and compelled by clinicians as part of treatment); algorithmic authority of information infrastructure and effects on the exercise of expertise and discretion of healthcare professions; clinician demands for documentation (and balancing these demands with patient-centered care); new forms of healthcare data work, including new occupations and tasks; and data-driven accountability and management in healthcare.

Original languageEnglish (US)
Title of host publicationCSCW 2018 Companion - Companion of the 2018 ACM Conference on Computer Supported Cooperative Work and Social Computing
PublisherAssociation for Computing Machinery
Number of pages7
ISBN (Electronic)9781450360180
StatePublished - Oct 30 2018
Event21st ACM Conference on Computer-Supported Cooperative Work and Social Computing, CSCW 2018 - Jersey City, United States
Duration: Nov 3 2018Nov 7 2018


Other21st ACM Conference on Computer-Supported Cooperative Work and Social Computing, CSCW 2018
Country/TerritoryUnited States
CityJersey City


  • Accountability
  • Coordination
  • Data work
  • Data-driven management
  • Electronic health records
  • Healthcare
  • Information infrastructures
  • Information infrastructures for healthcare
  • Patients
  • PROM

ASJC Scopus subject areas

  • Software
  • Computer Networks and Communications
  • Human-Computer Interaction


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